Tuesday 28 February 2012

The Daily Grind!..(Dogs are a girl's Best Friends).... Jacqui

Have been feeling rather yuk these last few days! Surprise, surprise...(sung in a Liverpudlian Cilla Black voice..being true to my roots!Precious few of those left , on the head at least!) I knew it would happen, but ever the optimist, was harbouring a secret hope that IT would not be quite as bad second time around. Hey-ho...I am here to report that the side-effects ARE back in a big ,fat, nasty, evil bastard way. Those two-faced steroids gave me false hope again, so here we are ,back at square one!

Mornings are the worst. I wake up (having not actually slept for more than minutes at a time..that's how it seems!) I get up in the way an octogenarian probably does, in slow, painfully unattractive movements until both legs are outside the bed.....hoist myself to upright and courageously don the lovely fluffy old lady dressing-gown, I have grown quite fond of, of late, as its unseasonably cold in Greece at the moment!

The next hurdle is getting through the living room, where the dogs will greet me, so I get a welcome sit-down and good old-fashioned face ,and lately, bald pate-licking!!! That's if I'm not sporting the sexy night-cap I wear in bed or the woollen beanie-hat on especially cold mid-mornings! (Don't imagine any of this is going on before 10am..I .mean it takes me half-an-hour to even open my eyes these mornings !)

Next leg of this daily marathon is opening the shutters to let said dogs out, which, of course is a waste of precious effort, since they aren't ", going out in that weather, not at the crack of dawn, Mum! NO WAY!" But my dogs are my support system, my replacement children and they NEED me, as R is at work all day. They give me the reason to make this huge, gargantuan journey from bedroom to kitchen every morning. They never judge me, nor pour scorn on my baldness and pale-faced ugliness.Nor do they make ANY allowances for my poorliness...To them I am just MUM, as I've always been and they need to eat. This is the relationship, after all, that all dog-lovers have with their wards,but it is thrown into sharper perpective, when that symbiotic union is sometimes what keeps you sane and (you'll think I'm kidding, in the face of all this) HAPPY!

Final leg: the kitchen. Kettle on, dog-food in bowls ( only 2 now, because we lost our beautiful Layla a few months ago to the same shitty disease.SHE was my hero because she never gave up, even when the vet was administering the injection that would finally bring her peace..she struggled and fought to the bitter end! That's my girl!)
Next my cereal and milk in my bowl, tea-bag (green,of course!)in cup with hot water......sit down, then ...back to bed!!

I am somewhat improved , movement-wise by the afternoon, so I DO look after my husband's needs, and he gets a meal every night, plus shirts ready etc. etc. during this "bad week", and I catch up on the real daily grind in the "medium bad  and feeling much perkier last weeks". All in the planning!! I should have it down to a fine art by now after all these chemo sessions, and I reckon I have!!

DAILY GRIND? DAILY DODDLE, more like!!





,

Saturday 25 February 2012

Well Ma, you've been busy! Can't believe my ever so slightly techno-challenged mother is now a blogger! And loving it! I'm so proud ;) So, what to write today... As mum's said, she lives in Greece and I live in London. Sometimes it's hard having someone you love going through something like this and feeling like you can't do anything to help them. But weirdly I don't think many people in my situation who live round the corner from their mum would feel any different. I'd love to go 10 rounds with the big C and kick it's stinking sorry arse until it had no more fight left in it and would admit defeat! I'd like to get in a "flight of the navigator"-type microscopic space ship and travel around my mum's body nuking every single cell! And do a ridiculous fist pumping, caber tossing, football kicking, pelvic thrusting, dad-like victory dance knowing I, wonder woman, have cured my mum of Cancer. Meanwhile back on planet earth, I have to leave this job to doctor Papadopodiplodocustyrranosaurusrexopoulos (or something like that) He's pretty good I guess, I mean my mum's still healthy after 6 years of this, but I still think they should let me at it!!! So, seeing as I can't be there, i try to let my mum know that I'm right there with her in spirit and I'm always here to talk. We are best friends and there's nothing I can't tell her and she tries to protect me from it all sometimes, ,but I'd rather know and deal with it together. I guess all people are different and cope in different ways, but as I said in my first post I think looking in the bright side is the way forward! I have an amazing, strong, loving, brilliant mum and really she's the wonder woman. More soon! G x

Friday 24 February 2012

The morning after pill.....Jacqui

I decided to do another blog, although its not really my turn! But Gemma has a proper job and may only blog at weekends, plus I seem to have a lot to say (some people would interject there, that I always do have! So??)

I just thought, as I'm fired and bolstered up on steroids today after yesterday's sesh, it would be a good time to write about it. I've been awake since 2am and its now 2pm, so I need another activity apart from online scrabble,tv, scrabble, feeding dogs,tv, kindle,tv,a spot of marigolding (only MY rubber gloves usually come from LIDL) and more scrabble). It would also be a waste and a shame not to take advantage of the clarity of mind afforded me for another 12 hours at least by the lovely but cruelly shortlived effect of said steroids!

These are given before the chemo drug in a big bag of saline along with other things like anti-emetics and anti-histamines....quite an anti-cocktail really! The anti-histamines make you sleep and the steroids wake you up! On balance I like the steroids best because I don't sleep much at the best of times, and at least I feel alert rather than just poorly!

So at the moment I don't feel too bad, all things considered. I took the anti-emetic pill this morning so no nausea. I am ravenous (another steroid bonus) so have eaten just what I fancy, which was 2 bowls of readybrek, brought back by Fbud (Best friend, who did meet me at the shopping mall yesterday!)from her recent trip to Old Blighty. (More, much more on Fbud another time...I need a whole blog for her!) I should maybe explain at this point that a) we live in Greece (I know..shock horror in these troubled times!) and b) I need readybrek because by next week the ulcers will be back and I wont be interested in food and isn't readybrek incredibly comforting and nostalgia-ridden?

Message to Gemma:Thank you so much I got the 2 packets you sent, but next time send by normal mail..that might get it here sooner..think it was stuck in that most efficient state of the art post-office system we have here!

Finally, I want to just say that , believe it or not, I would NEVER consider going back to the UK for my chemo or other treatments.I am very lucky(!) to have health insurance and so far have "sampled" pretty much all the very latest breast cancer (advanced) treatments. Tests  are done with no delay, and results returned into your own hands, to keep forever, either the same or the next day! The hospital is modern, clean, functioning , I know all the admission staff by their first names, the wonderful chemo nurses and my team of doctors are highly revered and highly qualified. Ah you will say, thats private for you, but I will say:wait a min......most, if not all of the other ladies on the C-ward come equipped with a special social security/national health booklet which means they are not paying guests and, believe me , they are getting the same amazing,life-saving treatment I am.! Maybe things will deteriorate now in the present climate of cut-backs, but I haven't seen it yet on C-ward, and long may it continue...Props to Greece and its wonderful medical services.....I, for one don't believe I'd still be here to write this blog today if it wasn't for Greece!!!!

 If I was getting any comments, (which I'm not) bet these observations will be a "cat-among-the pigeons" scenario!!! Now there's a challenge!

I'm off to try for a nap now, wish me luck!!

Wednesday 22 February 2012

Chemo no. 44

Hi it's me again!
This is a recent photo wearing my new and improved (since the first time I lost all my hair) wig! The photo Gemma posted on the first blog, (Love that one Gem!) was taken in 2007. I'd just been diagnosed with bone mets (so my lovely upbeat Doc turned out to be uber -upbeat..it did spread!)Although he was right about the 5 years..I was ok for 6! (They don't tell you what happens after the 5 year statistical cut-off!) I was having radiotherapy to my cervical spine (neck) at the time, hence the floaty scarf look!

So now its 5 years on from that time, and boy doesn't it show!! Last bit of historical info: Bone mets diagnosed in May 2007, Then Liver mets in September 2007, when I began notching up all the chemo sessions I mentioned..........

Neat segueway(?) to Chemo no.44! Not quite like Mambo no.5...well nothing like it really, but I wouldn't say it is totally devoid of jolly frivolity (similar to that experienced listening to, or singing along with Mambo, as you do...WE do anyway, right Gemma?)

The thing is this:  tomorrow I have to go to the hospital for my 2nd (3 weekly) cycle of chemo for this round. As implied above, I have mixed feelings about it, which means not ALL dread and terror.
In some perverse way, I actually look forward to these chemo-days!! And I'll tell you for why....
R (husband) drops me at the hospital mid-morning and toddles off to do  a half-day at the office. I am then left with 3 or 4 hours to kill before my appointment, and as luck would have it my best friend lives only 20 mins. away so more often than not meets me for coffee,lunch and a spot of retail therapy, because as luck(markII) would have it, there are not one but 2 shopping malls almost annexed to the hospital! Of course  it can make chemo-days more expensive than your non-chemo variety, but hey..I hardly ever go anywhere or spend any money during my"poorly periods".! OK, yes, Gemma, I use the same rationale for unnecesarry online shopping in the middle of the night, when I'm on the steroids...I bought a full colour range of Birkenstocks last summer and 2 pairs of Uggs to be on the safe side for the winter in case I had Palmar/plantar syndrome (sore ,red, flaking hands and feet..drug side-effect)!!

The other reason I actually WANT it to be a chemo-day is because it means I'm knocking another sesh off the list...usually 6 at least, and it gives you a sense of security that something is being done to kick my tumours' arse(s?).

The feelings are , however, "mixed" as I approach the C-day, becuase it means within 3 days of it (once those bloody wonderful steroids wear off!) I will crash like I've fallen off a sky-scaper, I will feel like I've been run-over by an articulated lorry, kicked by a gang of yobs, front and back,and have the distinct impression that the Incredible Hulk is permanently sitting on my head. On top of that I will feel weak, faint, sick, have constipation, no appetite, but no energy to make anything to eat anyway AND a mouthful of excrutiating mouth ulcers, so I can't speak (purgatory) and couldn't eat even if Jamie Oliver popped in to cook me a little of something I fancy!!

So you see..it ISN'T at all   comparable to an upbeat, cheery singalong song...it really is pretty shitty, but at least , as I've been told by a well-meaning family member, I AM lucky really,because I have a lovely-shaped head!!....
MORE TO COME, POSSIBLY FUELLED BY STEROIDS......














Monday 20 February 2012

Virgin Blogger

Soooo, looks like this is IT!  Its just taken me 10 mins to get into this page so I can write my first ever blog post (how am I doing so far on the tech terminology?). See, Gemma, I'm trying to sound trendy , but fishing for some older(?) generational empathy!

Obviously, I am Jacqui, Gemma's Mama. You might as well get used to that now, because we like the sound of that (Mum is for sons, of which I also have one) and we think Mummy's a bit babyish and too posh.........You can tell I'm putting off actually starting to blog (verb apparently as well as noun!) about the real subject of this blog (noun this time!). I should have done this years ago.....over 10 now, but didn't have wi-fi or a lap-top back then in the dark ages.......so with new technology at my fingertips and hours and hours of chemo-induced insomnia spent writing this kind of stuff in my head, and finally with the encouragement and promise to co-write this from my darling Gemma, HERE I GO.............
(Or..Gemma, is that enough for the first one????)

Where do I start? It would be easier to co-write this if Gemma and I lived in the same country. We don't, so she'll just have to  trust me! Well I am into my 7th round of chemo (ie. 7 different chemo regimes of up to 6 months each) in 11 years. (Boring but relevant Medical History to follow...bear with..bear with...) I was diagnosed with stage 1 (TEENYWEENY little lumpette) Breast Cancer in August 2001. Only1 lymph node affected...I mean what's the point in that? Why not go for the full 18, Big C?

It all happened so fast I was in for the op (lumpettectomy) in what seemed like minutes! I liked that...NOT the op, but the speed of it happening, because..duh..no time to think. Doc (German/Greek...great combo as it happens, medically speaking...tell you why later..) kept being very optimistic."sure it's benign..."ok NOT..""probably no lymph-node involvement.." "ok 1/18" "op,chemo,radiotherapy tamoxifen, follow-up for 5 years..back to same as before August 2001" So upbeat was he that when (remember Gemma/) he told us all this in his office pre my first ever virgin chemo (NOT a verb..wonder why?..I chemo, she chemoed , we would have chem......Oh shut UP!)SO upbeat was he, that when he said I'd be doing 4 cycles and would probably lose 7 kilos, Gemma and I turned to each other and gave each other a high-five with a huge grin on our faces!! (This is TRUE, isn't it , Gem?)

We then floated down the road, with a spring in every step(mixed metaphor!)
to the nearest fast-food restaurant and ordered fajitas  all round and a large jug of their special margaritas!!!

 What WERE we thinking? What possessed us to be in celebratory mode that fateful evening......I dunno...but it's that kind of thinking that we're talking about on this blog. Call it denial, call it communal madness, but without it I'd have been deeply, clinically depressed long since....

Cancer isn't inherently funny...I know that, Gemma knows that...we ALL know that ffs(!) BUT if you make it feel like it is (sometimes) ,laughter is just as important a medicine as any one of those 43 chemo-cycles that I've done up to now...........(OK, I counted them......)
TO BE CONTINUED...............

Sunday 19 February 2012

CANCER ISN'T FUNNY

Oh yes it is! What a lot of people don't seem to realise is that cancer happens to real people and those real people don't suddenly turn into morose, depressed, humourless defeatists. More often than not, they are people just like my Mum, Jacqui. Fearless, Brave, Survivors. With a bloody good sense of humour about the whole thing! (She's named her wigs HAIRther, HAIRiet and HAIRmione for god's sake!) She inspired me with her positivity and fighting spirit through the last 6 years of treatment and we decided to start this blog for us both to voice our opinions, share our experiences, help each other and hopefully help other people going through any stage of this bastard disease to see the brighter side and to find small ways to feel better when it all feels a bit shit. Positivity is a very powerful thing and I honestly believe that if you can think positive, sometimes the doctors can all be proved wrong.

Gemma